WP 7 : Proof of concept of sustainable structure on health information

Developing a proof of concept of a sustainable organisational structure that supports EU-centred research activities in the area of health data and information

WP7 carries out a proof of concept of a sustainable organisational structure that supports EU-centred research activities in the area of health data and information. The main objective of the structure is to support population health monitoring and health system performance assessment with the aim to foster evidence-based (health) policy. This involves refining the concept of a Health Information Research Infrastructure as a basis for a future European Research Infrastructure Consortium on Health Information for Research and Evidence-based Policy (HIREP-ERIC). WP7 also prepares an application for the European Strategy Forum on Research Infrastructures (ESFRI) roadmap.

Tasks

• 7.1  Bring together National nodes (NN) and domain-specific nodes (DSN) as part of the research infrastructure and create a sustainable network of networks. First, by developing guidelines on setting up NNs based on good practices and experiences by MS during the JA, and assists in setting up NNs and in identifying the consortium lead. Second, by developing criteria and procedures for the inclusion and selection of DSNs and an evaluation process including the requirements for sustainability for DSNs.

• 7.2  Develop a business case and roadmap for implementation for the Health Information Research Infrastructure. The business case is then translated into a 5-year operational roadmap for the fully functioning HIREP-ERIC with a detailed work plan including specific objectives, outcome and deliverables.

• 7.3   Draw up the interim and final governance structures of the Health Information Research Infrastructure.

• 7.4  Design a website providing the support platform for the Health Information Research Infrastructure. The site contains repository functions for technical reports and scientific articles, methods and tools, health information projects, indicators/data sets, information on NNs, DSNs, training programmes collected in the JA.

Outcomes:

WP 7: Policy Paper Health Information Research Infrastructure

WP 7: The Distributed Infrastructure on Population Health (DIPoH) booklet

WP 7: DIPoH LOGIC model

WP 7: Health Information Web Based Platform

WP 7: Guidelines National Nodes

WP 7: Sustainable Network of Networks

WP 7: Quality criteria for Research Networks

WP 7: Network Committee Terms of Reference

WP 7: Governance structure of a sustainable health information system

WP 7: Business case for the Distributed Infrastructure on Population Health-DIPoH

WP 7: The Health Information Portal

Information from the Assembly of Members can be found here.

Information from the NN meeting: From InfAct to PHIRI can be found here.

The leads and co-leads to this work package are:

Sciensano                                      Rijksinstituut voor Volksgezondheid en Milieu (RIVM)